by Guest | Apr 16, 2025 | meet your community
Charity Marks Brain Tumour Awareness Month with a Visit to London’s Blizard Institute In March, a group of trustees, supporters and bereaved family members from local charity In Sue’s Name were invited to the Blizard Institute at Queen Mary University London to meet...
by Guest | Mar 6, 2025 | meet your community
Why do families living with rare conditions like Angelman syndrome need our support? DID YOU KNOW? Angelman syndrome occurs in only 1 in 15,000 births. There are 7000 different rare conditions. And 3.5 million people in the UK living with them. People living...